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Learning and Living with ITP

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14 years 1 month ago #23659 by jraberna
Learning and Living with ITP was created by jraberna
I stumbled across this site tonight hoping to maybe find some answers. I am 28 years old and was diagnosed with ITP 2 years ago. I have had my sleen removed, taken IGIV (so many times I have lost count), taken predinose, and am now on Promacta. I have the lab band which I had done a year ago before taking the Promacta. I started the meds around 3 weeks ago. I was sick for 6 days. Could not keep anything down. It finally dawned on me that the Promacta was not going through my band. I went to the doctor today and my platelets had fell from 300,000 to 12,000. The doctor increased my Promacta dosage to 75 mg daily. I am wondering if anyone has a lab band and had issues. I am wondering if my body is absorbing the medication correctly. I am now cutting the pill into tiny pieces and getting it down without getting sick. If this does not work, I will start on the shot. So I am just wondering if anyone out there can give some advice. I am learning still slowly about ITP and how in the world it came into my life. Have faith is what I tell myself and my doctor tells me. I am just ready to live a normal (well somewhat:)) life. I would appreciate any feedback.

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  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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14 years 1 month ago #23660 by karenr
Replied by karenr on topic Re: Learning and Living with ITP
Is a lab band the same as a lap band?

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14 years 1 month ago #23662 by jraberna
Replied by jraberna on topic Re: Learning and Living with ITP
Yes sorry spelling when going too fast not a good thing:)

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.