Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

other forms of treatment?

More
14 years 3 months ago #21620 by debrasla
other forms of treatment? was created by debrasla
My son(22) has been on prednisone and is now at 160mg a day which they are lowering each week now that his rituxan treatments just started. I hear about other remedies for itp? What other remedies are some people talking about? does it really work?

Please Log in or Create an account to join the conversation.

More
14 years 3 months ago #21627 by Ann
Replied by Ann on topic Re: other forms of treatment?
Have a read of the latest international guidelines..

bloodjournal.hematologylibrary.org/content/115/2/168.full

They list things like steroids, IVIG, Anti-D (WinRho), immunosuppressants like azathioprine (Imuran) and mycophenolate (CellCept), also Danazol and Dapsone, and rituximab (Rituxan), and then the TPO (pronounced teepo) drugs eltrombopag (Promacta, Revolade) and romiplostim (Nplate).

They all have success with some patients and not others so it's trial and error. I tried 7 of those treatments myself ending up with Nplate which is working well with no side effects for me.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 3 months ago #21628 by Sandi
Replied by Sandi on topic Re: other forms of treatment?
Yes, there are other treatments. Your son is trying two of the most commonly used treatments. Hopefully, one of those will work and he won't need to move on to the others.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.