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Choosing versus being done to

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14 years 4 months ago #20479 by eklein
Choosing versus being done to was created by eklein
I'm noticing the difference in how people describe their treatments - a lot of us, especially new here, talk about doctors deciding to do this treatment or that to us. Some of us, especially after we've been in the whole medical arena for a while dealing with this, talk about choosing (usually in conjunction with the doctor) a treatment.

I think the difference is having knowledge of the disease and the research and the options and the risks, and having a realistic perspective of the medical profession. This is a good place to acquire all of that.

Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 4 months ago #20481 by Sandi
Replied by Sandi on topic Re: Choosing versus being done to
Good point, Erica!

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14 years 4 months ago #20515 by Dean
Replied by Dean on topic Re: Choosing versus being done to
Very good point. At first we usually just go with what the Dr says until we have been riding the rollercoaster awhile. Then we start choosing our treatments. My daughter has a friend that was recently diagnosed with ITP. She is scheduled to have a Spleenectomy next week!! I told her I felt this treatment was to soon and that there are many other options out there. I suggested she visit this site and to reconsider a Spleenectomy.

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14 years 4 months ago - 14 years 4 months ago #20523 by benny
Replied by benny on topic Re: Choosing versus being done to
Well said Erica, I could not agree more. In fact that's the same path I followed myself.
Benny.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.