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rituxan?? anyone???????? I need information....

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16 years 1 month ago #1962 by tortie
Replied by tortie on topic Re:rituxan?? anyone???????? I need information....
another potential problem with Rituxan is serum sickness, it rarely happens but seldom is listed as a potential side effect or complication. It is very rare for any of these problems to happen though.
en.wikipedia.org/wiki/Serum_sickness

I'm hopeful you will get some good follow-up regarding all you concerns. Mostly try to only treat ITP if you are having bleeding problems or counts are under 20k. A temporay boost for counts can be acheived with IVIG or Anti-d, I like these better than most other options.

Good luck

Michelle

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16 years 1 month ago #1978 by ddunn
Replied by ddunn on topic Re:rituxan?? anyone???????? I need information....
thank you for your response........I have about decided to put all of the doctors procedures on hold, and get a second opinion..........
I will call another doctor in the morning.

thanks so much everyone. I feel so much better.

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16 years 1 month ago #1979 by server
Replied by server on topic Re:rituxan?? anyone???????? I need information....
I sure hope you do feel better! I feel frustrated and confused for you! Nothing like hurrying up and waiting! Anyway, you gotta stay strong and like someone else said, it's ultimatly your decision, don't let anyone pressure you. Can't wait to hear how it goes.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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16 years 1 month ago #1980 by ddunn
Replied by ddunn on topic Re:rituxan?? anyone???????? I need information....
I have pretty much decided to see if i can get a second opinion. I have never been thru this process before, but i have found the name of a Dr. at Shands hosp in Gainesville, that specializes in ITP and benign related blood disorders. I am hoping he will see me if i call tomorrow. I did fax a letter to my original doctor lastnight and told her i wanted to speak with her again before preceding.

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16 years 1 month ago #1982 by hairball01
Replied by hairball01 on topic Re:rituxan?? anyone???????? I need information....
Denise
Hang in there........ my first Rituxan regimen was in '08. It gave me relief for over 6 months. But it took about 3 months after the initial treatment before it became effective. In the meantime, Prednisone will be your best friend.

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16 years 1 month ago #1983 by ddunn
Replied by ddunn on topic Re:rituxan?? anyone???????? I need information....
thanks. if prednisone is my best friend, i dont want any enemies!!!! LOL
I am hanging......and feel better about my decision. I just hope this doctor will see me, and the doctor I am seeing here in Ocala wont give me a bunch of bull.

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16 years 1 month ago #1984 by tamar
Replied by tamar on topic Re:rituxan?? anyone???????? I need information....
Hi Denise,

If you can get to Shands, that looks like a good place. The doc I'm guessing you're going to try to see sounds great (I googled benign hematology Florida); just want you to keep in mind that any doc at that clinic will be more up-to-date on the research than a doctor who doesn't teach...and that they routinely consult with each other while their students listen in as a teaching mechanism, so if you can see anyone there you're probably in good hands.

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16 years 1 month ago #1986 by ddunn
Replied by ddunn on topic Re:rituxan?? anyone???????? I need information....
i THINK U ARE RIGHT!!!!!!!! I HOPE THEY WILL TAKE ME. ....AND I HOPE IT DOESN'T TAKE FOREVER TO GET IN THERE EITHER!
i AM AT WORK NOW, BUT I AM GOING TO STAY AWAKE IN THE MORNING AND CALL.....

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.