Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

New article re: Inherited thrombocytopenia

  • Sandi
  • Topic Author
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 10 months ago - 14 years 10 months ago #16139 by Sandi
For those of you with a family history of ITP, this is worth reading:

bloodjournal.hematologylibrary.org/content/117/24/6673.abstract?ct
The following user(s) said Thank You: Jenuk

Please Log in or Create an account to join the conversation.

More
14 years 10 months ago #16245 by Jenuk
Sandi thanks for this. Rob and I were part of a genetic investigation. There are so few families in the UK, at the time I think I was told 11 families. So it became a bigger clinical investigation with people from all around the world. I think our samples (Rob's and mine) went to the labs in the USA. I am now wondering if this article is based on the outcomes of that. I could not really make sense of it to be honest.

But thank you for posting the link here - a few of us would be interested in having that paper translated so I'll write to Drew Proven.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.