Wiki

Ann wrote:

milly wrote: You seem to have formed your opinions from unscientifically supported information gleaned from, among other places, the Platelet Disorder Support Association (PDSA) website. I do not consider PDSA to be a neutral source on ITP. While much of what they publish has previously been documented by the medical community in many other places, some of what they present as "fact" is not, or is distortion of fact. This is an organization with a slanted point of view whose membership seems to largely be women with some degree of hypochondria.

Quoted from Wiki, why would you even bother to go there. I am a women but I don't think I am a hypochondiac.

He's talking to me with that quote and I have never seen that leaflet so he's wrong. Yo have to hit the "discussion" tab at the top of the page to see it all. I haven't looked to see if there's anything new there because I don't want to see it.

The study on fatigue is actually quite interesting because one of the measures says that the people with ITP actually underplay their symptoms compared with the controls. So we actually tend to think that our fatigue symptoms are more normal than they are, or we get so used to them that we under report it.

Fatigue and sleepiness are different measures. Some have one, some have both and some have neither. Fatigue to me means my legs feeling so heavy that I can't climb the stairs without hanging on to the banister. Or feeling that I don't have the energy to get out of the chair to go and get something to eat. Or starting to vacuum clean the carpet and having to sit down after the first two minutes because I just can't do it. That's not normal but it's only now after speaking to the author of that report that I accept it. Acknowledging I have fatigue doesn't make me a hypochondriac though, it's actually been quite helpful in a psychological kind of way.

I can't believe he has actually said that, that we are basically a bunch of hypochondriac's and that PDSA is not really a neutral source, I love coming here to this forum, it has so much love and support and it is good to know there are other people in the world going through thr same things as what i am. It makes me feel like i'm not alone.

I know the difference between when i am just tired from working hard all day and when i am feeling very fatigued from side effects of drugs or just cause my counts are low. I don't take things on wikipedia as being reliable sources and not just medical things, but on information about a lot of things as well cause anyone can update and edit things, but it sucks for people who when searching for things like ITP etc, Wiki is one of the first results to come up and that's what people tend to click on first, the first result shown.

The latest - this is better. I'll take it. It's factually correct.

"There is ongoing debate as to whether chronic fatigue symptoms being reported by some ITP patients are actually caused by ITP or are an artifact of the commonly employed therapies.[13][14] Many patients and some patient literature report that it is a common symptom,[15] and a small-scale research project has suggested a possible link.[16] However, the type of large-scale research required to conclusively establish a link has yet to be conducted and no obvious physiological relationship between ITP and chronic fatigue has been identified."


en.wikipedia.org/wiki/Idiopathic_thrombocytopenic_purpura

Interestingly enough, yesterday my hematologist also mentioned that there has been increased data to link fatigue and ITP. He did not cite Wiki as a source though.
.

I would hope not! I'd run from any doctor that cited Wiki!

I remember dumb-whatever he called himself. He wasn't a happy camper. I recall he was from the US, but in the talk he says he isn't. Neither here nor there though.

I looked him up on the old forum. He is from the US and said that he had no insurance so wasn't treating. Makes me wonder why he thinks he knows it all.

Still, we won this round so well done us.

I suppose you can't expect to much when he can't make up his mind what country he lives in.
Well done for the win though.