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can you tell?

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15 years 1 month ago #14035 by iam4ual
can you tell? was created by iam4ual
Okay I know this will be a dumb question, but I have to ask.

Does anyone on here feel like they know when their platelets are going up? I have been feeling the same way I felt when I was on steroids. Kinda jumpy, for lack of better words. The last time I felt this way my platelets jumped 30000. I am due to go for blood work tomorrow so I guess I will find out. But I just wondered if anyone felt different when theirs went up? I also do not feel as tired.

Shannon

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 1 month ago #14037 by Sandi
Replied by Sandi on topic Re: can you tell?
Nope - I've been surprised by platelet counts both ways. There were times when I thought they were up and they weren't, and times when I thought they were down and they weren't.

Good luck and I hope your intuition is right!

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  • server
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  • newcreationchangingdaily
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15 years 1 month ago #14038 by server
Replied by server on topic Re: can you tell?
I guess I'd have to say no, can't tell when they are going up. But I can tell when they are going down! Not so much with bruises and petecheia but with fatigue. I can tell a difference in my tiredness. There is a really big difference between tiredness and fatigue. When my counts are on the down fall I feel the fatigue big time. All the rest of the time I'm just plain old tired!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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15 years 1 month ago #14039 by eklein
Replied by eklein on topic Re: can you tell?
I can tell. I get very fatigued when they are dropping or low, and I can't drink at all. I feel much better, normal, when they are rising or high.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • patti
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15 years 1 month ago #14042 by patti
Replied by patti on topic Re: can you tell?
It is obvious in our boy. When his would go down he would get moody, fatigued, less hungry, his skin would get a green hue to it. Yep. we could tell when they were going up and down without ever looking for dots.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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