A wee update.

Hey am back with a quick update. My bone marrow came back okay, Sandi the doc is of the impression that healthy bone marrow will mean if my platelets dont pick up in 6 months or so that I should consider splenectomy. However I disagree, as I have become quite attached to my spleen am pretty sure it serves a purpose.

She has put me on 200 mg of danazol, am praying this works otherwise ill be back on immuno suppresants. PC was 22 today, so hopefully it stays there or increases. As far as I know danazol is a hormone type treatment for endimetriosis (sorry for bad spelling).

Dont have to go back for another three weeks thankfully.

Hope you are all well.

Glad to hear the good news! I knew it would be fine. Healthy bone marrow shouldn't = splenectomy. If your counts and controlling them get to the point that your quality of life is affected, then you consider it. If that never happens, you don't have to.

Good luck with Danazol. It can take a long time to work, if it does at all. It's not one of the best known for platelet response. I tried it and broke out in hives. The main side effects that people complain of are acne and mood swings.

Yea from what I have read there isnt an extremely high success rate with splenectomy anyway, so mine isnt going anywhere lol. Was a bit suprised that she even mentioned it so sosoon, im wondering if it is because each drop has takin me under 10.

Dont think the doc was too optimistic but my platelets havnt dropped as quick this time as they did from the last ivig. so may as well give it a go. I already have acne from the pred, as long as that and mood swings are only side effects it beats pred hands down. I would be a bit worried as she said the side effects from other treatments can be a bit worse, and I have said that I wont be taking any treatments that might hinder the completion of my degree and being a mother. Only got 8 weeks untill Im finished uni, so I have had low platelets for that long before. Does that seem reasonable and rational?

Whatever works best for you seems reasonable and rational. I always made the treatment fit my life (if at all possible) and went for the least invasive and time consuming ones.