Scripps Institute website can help

I was diagnosed with ITP in 2005 and have been through the whole range of treatments such as IVIg, Prednisone, Splenectomy(removed 2 spleens), Rituxin, Decadron,Vincristine. Nothing ever had any long lasting effects except the Prednisone which gave me cataracts and a few other problems. All through the remissions and relapses, I relied on the Scripps Institute's website www.scripps.edu/mem/itp/describe.html . Scripps has been doing research on ITP for a long time and is considered an expert on the subject. I did not know about PDSA until a few months ago and think it is wonderful. If you look at the information on both websites, they can help answer questions you may have.

Thank you, I'm always up for more good info. The link in your post came up not found. Is this more or less what you were pointing to: www.scripps.edu/mem/itp/

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Erica

Hello Erica,
Thanks for the correction on the link. The one you posted is correct. I did a quick copy and paste and messed up. I'm not too good with all this modern technology.
I'm glad you are of the same opinion I am. The more info the better. When we first started the ITP circus, my husband and I were totally lost. The Scripps site helped us tremendously. I just wish we had found PDSA at that time as well.

Interesting......some good basic information.
However, the first thing I saw on the website was: Updated: 5 April 2007.
That seems to indicate the information hasn't been updated in nearly 4 years?
They still have Promacta (Eltrombopag) and Nplate (AMG531) listed in the 'Experimental Therapy' section.
.

Yes, some of the info is out of date now but I relied mostly on the basic info such as treatments,causes etc that I needed to know when we first were confronted with ITP. Like I said before, Scripps and PDSA are great references but PDSA is more up to date.