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Charting Platelets

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15 years 4 months ago #11005 by jlollman
Charting Platelets was created by jlollman
Hello all,

Was wondering if anyone charted their platelet counts and if they used a graph of some sort that they would be willing to share?
I am wanting to chart my son's numbers on the computer instead of having misc. papers and numbers written on calendars..

Thanks!!

Julie

Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

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15 years 4 months ago #11006 by lornahalbert
Replied by lornahalbert on topic Re: Charting Platelets
I am a minimalist. I chart it in notepad on my phone. I periodically email the list to myself as backup. My list looks like this:

2010
01/23. 35k
02/14. 46k
03/02. 56k
03/08. 90k *after 5 days of 20mg/day pred.
11/12. 34k

The numbers are made up, but you get the idea.

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  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 4 months ago #11013 by Angel85
Replied by Angel85 on topic Re: Charting Platelets
That's how I do mine too, nothing special

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15 years 4 months ago #11019 by tamar
Replied by tamar on topic Re: Charting Platelets
I tried to post an excel chart, but the board won't accept .xls files.

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  • server
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  • newcreationchangingdaily
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15 years 4 months ago - 15 years 4 months ago #11022 by server
Replied by server on topic Re: Charting Platelets
I also use an excel to keep track. Here a small part I cut and pasted. To the left are the dates and across the top are the names and "safe" ranges. I also color coded it. Red is a high number, blue is a low number and black for normal readings. It makes it easier to read. I like having it all in one place! I'm weird that way!




WBC RBC HGB HCT MCV MCH MCHC RDW PLATELET
3.6 3.8 11.1 33.4 81.0 27.0 33.0 11.5 148
10.8 5.2 15.7 46.0 99.0 31.0 37.0 14.5 402

2.11.10 20
2.17.10 15.4 4.0 9.7 30.3 76.5 24.4 31.9 17.9 27
2.26.10 20.2 10.6 32.5 11
3.01.10 9
3.03.10 8
3.04.10 38
3.05.10 14.5 4.4 11.1 33.7 76.9 25.2 32.8 20.4 32


EDIT: I see that when I posted it it got all squished together. and having the grid lines makes it a whole lot easier to read too!

My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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  • april
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15 years 4 months ago #11027 by april
Replied by april on topic Re: Charting Platelets
Some of my patients send me Excel spread sheets, noting all of their CBC components, and also add on a column to put in any treatments given, and another one for any illnesses or other events that might account for a rise or drop. I think that's important, to be able to keep an overall view of what is happening, and what might be influencing it.
If you can figure out how to make one, I think a line graph gives a very good visual, and can help to easily identify a pattern, if any. I find the graphs easiest to use.

Being a bit techno-challenged, I can't offer any help with doing this, but I bet any junior high or high school kid could show you, if needed.

April

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15 years 4 months ago - 15 years 4 months ago #11053 by Tad Moody
Replied by Tad Moody on topic Re: Charting Platelets
I started charting my platelet count in 1980, but stopped when all treatments, including a spleenectomy, eventually failed. Note the "downward trend" each of the "peak" counts getting lower and lower. ( Attached chart is 1980 to about 2008 )

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  • weirdjack
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15 years 4 months ago #11064 by weirdjack
Replied by weirdjack on topic Re: Charting Platelets
I keep an email to myself updated with count numbers, meds, dosages, etc.
Other than that, I don't really think about it.
My GP and Hema are both in the same hospital network and electronic record system, so the historic info is there at a glance for them (for me as well).

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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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15 years 3 months ago #11147 by karenr
Replied by karenr on topic Re: Charting Platelets
I use a Word table--pretty simple, but it works. Ist small column is date, 2nd is platelet count, 3rd is pred. dosage.

12-15-10 28K 20
12-22-10 63K 15
12-28-10 36K 14
1-3-11 31K 14

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15 years 3 months ago #11284 by barrelgal
Replied by barrelgal on topic Re: Charting Platelets
I use google health to keep track of all my numbers. It allows you to add notes and put in treatment dates, and is accessable through any internet connected computer. I just log in and can update my counts wherever I am.

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15 years 3 months ago #11285 by jlollman
Replied by jlollman on topic Re: Charting Platelets
Thanks for the ideas!!
I will definitely check out Google health.

Julie

Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

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15 years 3 months ago #11320 by debbied
Replied by debbied on topic Re: Charting Platelets
I just write it on the calendar on the day I went. I like simple too.

Debbie D

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.