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Experience with muscle recovery post pred??

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15 years 4 months ago #10218 by SteveC
Experience with muscle recovery post pred?? was created by SteveC
My hemo and GP both say it'll take time - rather general but I'd like to know from general experiences. I started with 100mg/day and tapered 5mg/week. Due to pneumonia and hospitalization I was using pred for 19 weeks. My thighs and shoulders are noticeably week but I have to realize I've only been off pred for about 4 weeks.

Any timelines to share?
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C

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15 years 4 months ago #10222 by eklein
Replied by eklein on topic Re: Experience with muscle recovery post pred??
Hi Steve,
I had very bad muscle pain and weakness as I tapered and for several months after. I would say by 4 months of no pred I was back to normal. It was scary though. And I remember for example sitting on my bus on my way to work thinking about how I would have to stand up soon and how that would hurt and be very difficult and hoping I could do it ok.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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15 years 3 months ago #11178 by CrystalBall
Replied by CrystalBall on topic Re: Experience with muscle recovery post pred??
I have been on prednisone for almost 3 years...the last 9 months hovering between 5mg and 1mg. My thighs are still weak and have been diagnosed with prednisone myopothy. The Rheum I saw said it takes as long as you were on prednisone for it to go away- if it every does. He has a woman that was on HDP for something else and is in leg braces to this day. It saves lives but leaves a mark too.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.