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Rheumatoid Arthritis

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3 years 8 months ago - 3 years 8 months ago #72542 by RR01
Rheumatoid Arthritis was created by RR01
Does anyone have neck and shoulder pain along with joint pain in your fingers and knee. I am thinking maybe I got RA :(. Does anyone have arthritis along with ITP? Since ITP is auto immune wondering if RA is an easy possibility as well?

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3 years 8 months ago #72543 by ImPatient
Replied by ImPatient on topic Rheumatoid Arthritis
I've only got joint pain everywhere since I used Eltrombopag, so for me I think it's probably a side effect that persists and can be fixed someday. Eating salmon and tuna helped a lot, I actually stopped being vegan after 17 years, because it improved my pain and my platelet level.
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3 years 8 months ago #72546 by MelA
Replied by MelA on topic Rheumatoid Arthritis
RR01 have you talked with your hematologist or PCP about this?  There are tests to determine if one has RA.  Why not talk with your doctor and get the tests done?   I have arthritis, not rheumatoid arthritis.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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3 years 8 months ago #72565 by RR01
Replied by RR01 on topic Rheumatoid Arthritis
Does anyone take Tylenol daily with ITP. Does it affect platelet count? 

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 8 months ago - 3 years 8 months ago #72570 by mrsb04
Replied by mrsb04 on topic Rheumatoid Arthritis
Assuming Tyenol is Paracetamol, I took it regularly when I broke my wrists. No affect on my platelet count.
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3 years 8 months ago - 3 years 8 months ago #72572 by MelA
Replied by MelA on topic Rheumatoid Arthritis
RR01  how much Tylenol are you taking daily?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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3 years 8 months ago #72575 by RR01
Replied by RR01 on topic Rheumatoid Arthritis
Haven't started yet, I thought that taking pain meds would lower the platelet count. So holding up on that. Hence wanted to hear from you all about any experience with regular pain meds. My platelet count is really really low 

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 8 months ago #72576 by mrsb04
Replied by mrsb04 on topic Rheumatoid Arthritis
My count is generally in single figures. Paracetamol has had no affect on it 
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3 years 8 months ago #72577 by MelA
Replied by MelA on topic Rheumatoid Arthritis
Tylenol is what I was told only to take (Tylenol and Paracetamol are the same) - just Tylenol.   It has not dropped my count to my knowledge.  Just need to make sure you don't take more than allowed in a 24 hour period!!

Why not talk with your hematologist about this?

(What I found interesting is when I had total knee replacement I had to take baby aspirin for a few weeks to ward off blood clots, well my count actually went up :) and we aren't supposed to take aspirin)
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.