Platelet Disorder Support Association

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Newly diagnosed.

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4 years 3 months ago #72094 by rmunns
Newly diagnosed. was created by rmunns
I was diagnosed 1 week ago. I woke up with blood in my bed and huge blood blisters in my mouth. Went to hospital and my platelets were less than 1. Spend a few days in the hospital doing steroid treatment. Went home platelets 90,000. Three days later Woke up with blood on my pillow, mouth blisters. Went to ER. Platelets less than 1. Did transfusion, ivig, steroids. Platelets up to 38,000. They think they will discharge me today. Prior authorization request sent for Promacta.  Any thoughts on knowing your platelets have dropped prior to bleeding? Other thoughts on how I take care of myself at home. Things to do and don’t do

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 3 months ago - 4 years 3 months ago #72097 by mrsb04
Replied by mrsb04 on topic Newly diagnosed.
Have a look at this 
pdsa.org/patients-caregivers/disease-information.htm

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4 years 3 months ago #72098 by rmunns
Replied by rmunns on topic Newly diagnosed.
Thank you. This is not my first immune disorder. I am trying to get my hands on all the information I can. Knowledge is very help to me. 

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.