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How do you monitor your counts?

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7 years 1 month ago #65953 by sillyman
How do you monitor your counts? was created by sillyman
Are there any portable machine to check platelets level at home?

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  • b2h
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7 years 1 month ago #65955 by b2h
Replied by b2h on topic How do you monitor your counts?
Not that I know of. I wish we could treat ITP in a way similar to diabetes. Prick finger for platelet count, inject Nplate or take pill or... Though now I am accustomed to going to the lab and infusion center and having my doctor oversee it all, so I don't dislike it the way I used to.
Still, I think a home platelet test would be a good invention.

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7 years 1 month ago - 7 years 1 month ago #65956 by MelA
Replied by MelA on topic How do you monitor your counts?
No machines like you are thinking of.

Finger slices (I do not call them finger pricks as they aren't pricks, they are a barbaric slice) are not good for a platelet count, squeezing the blood out can give a false count.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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  • b2h
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7 years 1 month ago #65957 by b2h
Replied by b2h on topic How do you monitor your counts?
Sounds like you have experience. :( Good thoughts. For some reason I thought it was a prick, similar to a blood draw with a needle. There are lancet free monitors and some people have done bio-hacking, but...
Anyway, good info. Thanks

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7 years 1 month ago #65959 by MelA
Replied by MelA on topic How do you monitor your counts?
My son was given a finger "prick" when he was about 12 - had I known I would not have let them do it but I didn't know it was a slice until they gave it to him and then later I had one myself and it hurt BAD!! When my hematologist's office sent out a note they were going to finger "pricks" I never ever let them do it to me!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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  • b2h
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7 years 1 month ago #65966 by b2h
Replied by b2h on topic How do you monitor your counts?
Wow. I have more empathy for diabetics now.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 1 month ago #66072 by Sandi
Replied by Sandi on topic How do you monitor your counts?
Most just go by symptoms. If you feel like you need to know numbers, ask for a CBC.

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  • ecoclayton
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  • Diagnosed with ITP 5/23/19
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6 years 10 months ago #66873 by ecoclayton
Replied by ecoclayton on topic How do you monitor your counts?
A home test sure would be nice. It takes at least an hour each visit just going in 2 times a week for my CBC. I do realize that once we have this under control I won't be getting CBC's so often.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.