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Options for very low platelet + enlarged spleen (splenomegaly) situation

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8 years 1 month ago #63011 by GilbertPDSA
Options for very low platelet + enlarged spleen (splenomegaly) situation was created by GilbertPDSA
Any experiences or thoughts for a friend of ours, she has very low platelets -- around 2,000 (per microliter) at the moment -- and also a very enlarged spleen. Her doctors would like to remove her spleen, as the platelet-gobbling culprit, but with such low platelets don't dare to try because of the bleeding problem.
p.s. She's age 50, is currently hospitalized, and has been trying out a number of medications: Rutaxin + Rituxan, a fungal medicine, and steroids.

Thanks! -The Gilberts

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 1 month ago #63012 by Sandi
Replied by Sandi on topic Options for very low platelet + enlarged spleen (splenomegaly) situation
Hello Gilberts!

Has your friend been diagnosed with ITP? I'm asking because it's rare for the spleen to be enlarged with ITP. Usually, an enlarged spleen can indicate another problem. It's odd that they would be using Rituxan since it isn't known to work quickly. It can take 4 to 12 weeks to work, if it works at all. There are other treatments that kick in much faster. What is the fungal medication for?

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.