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Itp and factor v

  • dneaphen@comcast.net
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8 years 7 months ago #60818 by dneaphen@comcast.net
Itp and factor v was created by dneaphen@comcast.net
I was diagnosed with itp 3 years ago steroid treatment then splectomy and now 3 years of declining counts. Just went through 2 high dose weekend dexamethesone treatments first weekend they dropped to 16 now following second treatment they are 750 but they took me off my blood thinner warafin for my blood clotting disorder. Yes I have been blessed with 2 bleeding disorders. Trying to keep counts up to perform bone marrow biopsy next week. I am on low dose lovenox shots right now but still worried about a blood clot. After my splenectomy my count went up this high and I got a blood clot in my portal vein. I am 53 year old female and just wondering since I seem to be baffling oncologist if there's anyone out there in my situation.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #60819 by Sandi
Replied by Sandi on topic Itp and factor v
We have some people who are juggling low counts and blood thinners, but not due to Factor V. Clotting is not uncommon for people with ITP especially after splenectomy. I hope you get your counts under control soon....
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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 7 months ago #60825 by Hal9000
Replied by Hal9000 on topic Itp and factor v
dneaphen, what is confusing your oncologist? Something to do with your upcoming bone marrow biopsy?
ITP Types and Treatments by HAL

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8 years 7 months ago #60827 by dneaphen@comcast.net
Replied by dneaphen@comcast.net on topic Itp and factor v
Just the 2 different blood disorders. Clotting and bleeding.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #60829 by Sandi
Replied by Sandi on topic Itp and factor v
It can be difficult to juggle them. You really need someone who knows what they are doing. Having major count swings like that isn't good, as you well know..
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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.