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Diagnosed in January

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10 years 5 days ago - 10 years 5 days ago #54076 by Gshelton
Diagnosed in January was created by Gshelton
Hello,

I got diagnosed in January after being admitted to the hospital with a count of 3. After a transfusion, three nights of IVIG and a lot if steroids I got to go home. I'm now living with the week to week blood work. It's so frustrating. I started the nplate a couple of weeks ago and have had at least 4 shots. They keep having to up my dosage. My numbers jump from 60 to 7 in a week. SO FRUSTRATING. I don't have anyone around me that has any idea what I'm going through and while I have family and friends being supportive, it's not the same. Luckily I am no longer on steroids but it's still so challenging.

Sorry for the rant!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 5 days ago #54079 by Sandi
Replied by Sandi on topic Diagnosed in January
Stick with N-Plate for a while. It does seem to be working. The injections are usually dosed just to keep patients around 50k. Some people end up switching to Promacta because it is more of a steady dose (daily) and they don't have the sudden drops. It can take time to get stable on either of those. ITP takes patience and I know that is hard.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.