Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Body aches associated with ITP?

More
11 years 4 months ago #45329 by Cherri72
Body aches associated with ITP? was created by Cherri72
I was recently diagnosed with ITP with my platelets running 70 to 84. My main concern is the severe leg pains along with pain in the underarm/shoulder area that makes me want to crawl out of my own skin. With the pain I have large bumps that are very sore to the touch. I am being tested thru primary care physician for other things before he will refer me to rheumatologist. I wanted to know if anyone with ITP suffered with this type of pain or if I am looking at possible lupus.

Thanks

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
11 years 4 months ago #45330 by Sandi
Replied by Sandi on topic Body aches associated with ITP?
Hi Cherri!

I would say that is not ITP related.

What sort of bumps; where are they?

Describe the leg and arm pain a bit more.

I don't remember ever specifically reading about large painful bumps being a symptom of Lupus, but then pretty much anything can be a symptom so I wouldn't rule that out.

Please Log in or Create an account to join the conversation.

More
11 years 4 months ago #45340 by eklein
Replied by eklein on topic Body aches associated with ITP?
I saw one of those Mystery Diagnosis shows with similar symptoms and it turned out to be a pancreatic tumor. It doesn't sound like ITP at all and I've not heard of anything like that with lupus.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

More
11 years 4 months ago #45344 by Aoi
Replied by Aoi on topic Body aches associated with ITP?
That doesn't sound like it's related to ITP. I've never had anything like that since I was diagnosed. I hope you can get it resolved soon.
The following user(s) said Thank You: Cherri72

Please Log in or Create an account to join the conversation.

More
11 years 4 months ago #45346 by Rob16
Replied by Rob16 on topic Body aches associated with ITP?
Hi Cherri,

Thrombocytopenia is only called ITP if there is no other cause, and it is assumed to be auto-immune.
Low platelets can have MANY causes, and since you have other symptoms, it is best to look at all of the possibilities and not jump to any conclusions. Your PCP is doing the right thing to rule out the other possibilities before referring you to a rheumatologist or a hematologist.
The following user(s) said Thank You: Cherri72

Please Log in or Create an account to join the conversation.

More
11 years 4 months ago #45410 by Kyndig
Replied by Kyndig on topic Body aches associated with ITP?
I had serious body aches to the point I was curled up in bed all day, but I do believe that was a side effect of prednisone 100mg. Acne was also a bad side effect, but sounds like you should investigate further.

Please Log in or Create an account to join the conversation.

More
11 years 3 months ago #46106 by sntaday
Replied by sntaday on topic Body aches associated with ITP?
I am a male with ITP and I have flank pain on the left side of my body, mainly my left hip. Left leg sore to the touch and dull aches and pains.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.