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I don't know what to do?

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11 years 10 months ago #41847 by Wwfbader
I don't know what to do? was created by Wwfbader
I'm 19 and I was diagnosed when I was 17 back in 2012, I have tried rituximab and multiple trials of IVIG and prednisone. At this moment, I've been going every month and a half to receive my IVIG treatment but after two years it's now becoming a scare that the IVIG might stop working. Living in Canada, i'm fortunate to have free health care but the province i'm living in does not cover other treatments other than IVIG, rituximab and the spleenectomy. Since IVIg is only temporary, my next option is spleenectomy. I, however am really afraid and fearful of the operation, and the success in the long run. I don't want this being one operation leading to several more in the future. I genuinely don't know what to do now

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 10 months ago #41858 by Sandi
Replied by Sandi on topic I don't know what to do?
What happened with Rituxan? Did you have no response at all or did you get a temporary response?

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.