Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Rituximab Drug as second line intervention

More
12 years 3 months ago #39425 by rcarter15
Replied by rcarter15 on topic Rituximab Drug as second line intervention
Round 3 over, platelets at 210k seems I am stable for the past week (well slight increase from 206 to 210k)

One more week to go.

On the plus side the spots I gained during the steroid treatment have started to disappear! :-)

Richard

Please Log in or Create an account to join the conversation.

More
12 years 3 months ago #39434 by AlizaGC
Replied by AlizaGC on topic Rituximab Drug as second line intervention
I've been following your posts since our stories started around the same time and we have been on a similar course of treatment (IVIG, prednisone, then rituxan). I just had my last infusion last Friday and am almost off prednisone (down to 5mg). My platelets have been hanging around 100,000 (86k, 97k, and 114k were my last three counts). Good luck with your remaining infusions! It will be interesting to see how we are doing in a few months - hopefully both with stable counts!

Please Log in or Create an account to join the conversation.

More
12 years 3 months ago #39435 by rcarter15
Replied by rcarter15 on topic Rituximab Drug as second line intervention
Glad to hear your count is stable, fingers crossed for the future.

Mine seems rather high at 200k (whilst in remision I was hovering around 80k) but I'm not going to moan ;-)

take care

Richard

Please Log in or Create an account to join the conversation.

More
12 years 3 months ago #39550 by rcarter15
Replied by rcarter15 on topic Rituximab Drug as second line intervention
Well 4th session of rituximab complete, platelets at 185k so they have dropped about 30k in the last week hope that's not a bad sign.

Next review is with the consultant on the 12th feb so wont know more till then. Fingers crossed they stabilize around the 80k +

Hope everyone else's treatment is going okay ;-)

Richard

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 3 months ago #39554 by Sandi
Replied by Sandi on topic Rituximab Drug as second line intervention
That's great, Richard. I'm glad it's all over.

Please Log in or Create an account to join the conversation.

  • dru
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
More
12 years 3 months ago #39600 by dru
Replied by dru on topic Rituximab Drug as second line intervention
My counts fluctuated quite a bit during and right after Rituxan , but I eventually ended up with lasting remissions both times I had rituxan.

Glad you are doing well!

Please Log in or Create an account to join the conversation.

More
12 years 2 months ago #39940 by rcarter15
Replied by rcarter15 on topic Rituximab Drug as second line intervention
Hi all,

Just to round off my experience to date, its now been nearly a month since I had the last of my Rituximab sessions.

I saw my consultant today and my level was 178k, so almost double my normal ;-)

He is happy that I have responded to the rituximab and now its just a matter of monitoring (count done once a month)

fingers crossed and thanks again for everyone's advice.

Richard

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.