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GOOD NEWS!

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13 years 2 months ago #31062 by DTMEDIC
GOOD NEWS! was created by DTMEDIC
As some of you may recall I was diagnosed with ITP in late January 2012. Platelets were 3K with spontaneous nose bleed (and I found out yesterday...blood in my urine then too). I received really aggressive treatment with Platelets, IVIG and a Decadron 4-day pulse. My platelets rebounded within a week to 500+ and then settled down in the 200's by the week after. I saw my hematologist yesterday and platelets are still holding steady in the 200 range for the past month so I can switch from weekly CBCs to every 6-weeks as long as no symptoms appear. He also said that while we won't know for a few months, he believes that mine will likely be Acute ITP vs. Chronic ITP...and that I may never be bothered by it again.

I know that so many of you are struggling daily with counts that go up and down or treatments that don't provide the hoped for benefits, so in some respects I feel a little guilty that I am doing so well...but I just wanted to share my good news with people I know understand what its like to live with the worry of ITP...and to thank you all for your support and information since I've come to this site.

Debbie

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #31071 by Sandi
Replied by Sandi on topic GOOD NEWS!
Debbie:

That's great! I don't think anyone still struggling will be jealous of your success, I think they will be boosted by the possibility that it can happen!

Keep us posted!
The following user(s) said Thank You: jeffrey71, DTMEDIC

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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13 years 2 months ago #31078 by dru
Replied by dru on topic GOOD NEWS!
Debbie

What great news! Always nice to hear someone is doing well :)

Dru
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13 years 2 months ago #31079 by jeffrey71
Replied by jeffrey71 on topic GOOD NEWS!
Hey Debbie!

I am so happy for you! Now go get em girl! You know you can stay in touch... Just sayin! :laugh:

Jeffrey
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13 years 1 month ago #31124 by DTMEDIC
Replied by DTMEDIC on topic GOOD NEWS!
Thank you everyone...I'll still be lurking around the site for awhile I imagine...Sending best wishes to all of you for stable platelets and great general health!! ;)

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.