Platelet Disorder Support Association

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My daughter needs help

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14 years 11 months ago #15382 by grice1911
My daughter needs help was created by grice1911
She lives in PA and called a number that was supposed to be a helpline. The man in NJ said he didn't have ITP and was sympathetic to her concerns, but could offer no help. Is there an actual support group? Is there a phone number she can call?

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14 years 11 months ago #15384 by eklein
Replied by eklein on topic My daughter needs help
There are some local support groups, you can find out more here: www.pdsa.org/join-the-community/local-groups.html but I hadn't heard of any of them running a telephone helpline. I've heard that if you call PDSA ( www.pdsa.org Phone: 1- 87-PLATELET 877-528-3538 (toll free) or 301-770-6636) they will help you find information or resources. Can your daughter access the pdsa website? There is a wealth of information here.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 11 months ago #15385 by Sandi
Replied by Sandi on topic Re: My daughter needs help
Is there a reason she needs a hotline? She can post here and get fast answers. What's going on?

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Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.