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Other Platelet Disorders

Its been a few weeks

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16 years 1 week ago #2755 by tigereyes
Its been a few weeks was created by tigereyes
Well its been a few weeks since I have really posted much of anything. I have been reading posts just not posting. Its been a hard couple of weeks for me. I started on Imuran about 2 months ago and once I got over the side effects--headaches, nausea and dizziness. It isnt all that bad. My foot pain has returned but I cant be sure it its from the pred taper or what. Im down to 10mg a day and I have never been in so much pain. On Monday I could barely move. Overall Im doing ok, the rash on my cheeks hasnt gotten any better, or anyworse. But I do have what I would all almost pimple like sores all over my body. Mainly where my clothes rub on me, like my bra, or my pants. Every morning there are more and they are quite painful. My hair has started to fall out not in huge chuncks but enough for me to mention it to my dr. She told me its a side effect of the medications. I dont see her for another month and wonder if I should mention these sores to my hema or possibly call my rhema.
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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16 years 1 week ago #2758 by Sandi
Replied by Sandi on topic Re: Its been a few weeks
Call your Rheumatologist, Jen. Sorry things are not going well.

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.