Well its been a few weeks since I have really posted much of anything. I have been reading posts just not posting. Its been a hard couple of weeks for me. I started on Imuran about 2 months ago and once I got over the side effects--headaches, nausea and dizziness. It isnt all that bad. My foot pain has returned but I cant be sure it its from the pred taper or what. Im down to 10mg a day and I have never been in so much pain. On Monday I could barely move. Overall Im doing ok, the rash on my cheeks hasnt gotten any better, or anyworse. But I do have what I would all almost pimple like sores all over my body. Mainly where my clothes rub on me, like my bra, or my pants. Every morning there are more and they are quite painful. My hair has started to fall out not in huge chuncks but enough for me to mention it to my dr. She told me its a side effect of the medications. I dont see her for another month and wonder if I should mention these sores to my hema or possibly call my rhema.
Jennifer
Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times
Latest counts 8 4/2013-just started Promatca
Diag. 9/2006