Hi, I'm Amy. This is my first post and I'm new to this site. So..it's been a year since my diagnosis of ITP (now steroid dependent ITP) at Thailand. I'm 17 and live in Myanmar, which has quite horrible healthcare, hence my biweekly/monthly Bangkok visits to checkup. I've been with a young doctor for the past year and am on 15mg predisolone and 25mg revolade and a tablet of imuran per day(along with iron and calcium). My counts were 14 last week and has dropped down till 8 and up to 143(with a platelet transfusion and 4 dexa shots).
Just yesterday I went to see a new doctor for a second opinion; he's more experienced, older, and has more degrees. However, he barely looked at my history and prescribed 6 pills of predisolone for a week(30mg), then 4 for another(20mg) then 2 for another week(10 mg) until the checkup. He also wants to stop imuran and upper the dose of revolade to 2 a day.From my previous experiences, my platelets has dropped significantly after just one pill taperings (15 mg to 10 mg tapering in 2 weeks; platelets dropped from 93 to 15; she tapered it back to 15 mg)I, like everyone else, DESPISE predisolone as well due to never ending side effects. It really takes a toll on my mood and life in general. However, the new doctor said that it'll be fine and for me to keep drinking them. :sick:
Both doctors has told me not to stress, but now, with the decision of which doctor to listen to in my own hands ( my parents left it up to me),I feel more stressed then ever. Should I trust the new doctor(whose prescription cost ALOT of money)? Should I just continue with my old one although the new more experienced one seems to question her methods( platelet transfusion, too little steroids, imuran...)? Does the new doctor's prescription sound..reasonable/correct? I am also near my exam week and don't need any more stress right now, Haha. I ended up crying (couldn't control) next to a stranger in the plane back home because I couldnt decide.. It's possibly a side effect from the dexa shot at Saturday(these mood swings though!). I'm still drinking my old doc's prescription at least until I decide. Any advice would be greatly appreciated! :S