Platelet Disorder Support Association

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Any Ideas??

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13 years 5 months ago - 13 years 5 months ago #24077 by Miss Emma
Any Ideas?? was created by Miss Emma
Hi I'm Emma and i have had ITP for about 4 months now. But i'm optimistic about the future. If anyone has any ideas for treatment options please let me know. I'm currently on steroids but there not helping. We have tried IGG and the only thing it did was give me a nasty headache the next day:P
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13 years 5 months ago #24091 by Ann
Replied by Ann on topic Re: Any Ideas??
Hi Emma, I'm not a teen but there aren't many teens about. You could post in the adult section too and you will get more responses.

What is your platelet count doing? They usually try steroids first but they often don't help or the count falls again when you stop them. There are other things to try and I'm sure your doctor will discuss your options with you. Keep being optimistic as it helps.
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13 years 2 months ago #26096 by Hdavis619
Replied by Hdavis619 on topic Re: Any Ideas??
Hi I'm heather im almost 19 I've had itp for 2 years now I've had whinrow retux ivig steroids and I'm about to start a 6 month round of chemo there arnt meny options out there my next step after chemo is a spleen ect and if that dosnt work then I'm stuck at a dead end hope that helps
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13 years 2 months ago - 13 years 2 months ago #26102 by Ann
Replied by Ann on topic Re: Any Ideas??
Heather, what is the chemo drug that you are next to have? Have you tried the two newer drugs, Nplate or Promacta?
The following user(s) said Thank You: Hdavis619
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13 years 2 months ago #26107 by Hdavis619
Replied by Hdavis619 on topic Re: Any Ideas??
I'm not sure it's a cocktail of things and I think I tried the n plate but I'm not sure but il look them up and ask my doctor
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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