Platelet Disorder Support Association

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Just diagnosed

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14 years 6 days ago #18831 by Alex
Just diagnosed was created by Alex
Hey, my names Alex and I have just been diagnosed with ITP. My platelet count is under 10k. i've only had it for about two weeks. I have petechiae bruising mostly on my legs. I can't do basketball or any of the sports I usually play. Any one with similar problems?
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14 years 5 days ago #18853 by Ann
Replied by Ann on topic Re: Just diagnosed
Not many teens here but hopefully someone will appear soon. Welcome anyway. I'm an adult with ITP.
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14 years 5 days ago #18854 by Alex
Replied by Alex on topic Re: Just diagnosed
Thankyou and i hope so I had a neighbor with TTP but he was the only person i knew with something close to ITP
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14 years 5 days ago - 14 years 5 days ago #18876 by Ann
Replied by Ann on topic Re: Just diagnosed
Wow TTP is rare too but so much worse I think. I'd rather have ITP I think.

Are you having treatment or are you on the watch and wait regime?
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14 years 4 days ago #18891 by Alex
Replied by Alex on topic Re: Just diagnosed
Yeah TTP is where he also has red blood cout too. Its a lot worse but hes fine now. And im not cyrrently doing any treatment but if my count doesnt go anywhere by next week im getting IVIG
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14 years 4 days ago #18907 by shannon17
Replied by shannon17 on topic Re: Just diagnosed
Sorry to hear, I found out I had ITP back in June. Spent the first long weekend of the summer in hospital. Now I'm just crossing my fingers that it was a one time thing. If not I won't be able to play rugby this year. Which really bites cause I was looking forward to it not to all the running and crazy drills my coach thinks up but the whole hitting people is a major stress reliever. lol

By the way I hope you don't have to find out for yourself but the IVIG isn't too bad. Just make sure you have a lot of fluids and something to eat before you have the treatment otherwise... well weird stuff happens. The headaches can be terrible if your lucky you won't get any but if not I'd ask for anti-nausea medicine as soon as possible. And how do you react to morphine?
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14 years 13 hours ago #18977 by Alex
Replied by Alex on topic Re: Just diagnosed
Ive never had morphine but im sure im fine an thanks for the advice i like lacrosse to cause hittin people does relieve a lot of stress and my patechiae is gone so i hope im getting better hope hope you get to play rugby
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14 years 6 hours ago #18992 by mtbailey
Replied by mtbailey on topic Re: Just diagnosed
hey alex
my name is madison
I'm also a teen who was diagnosed recently (a month)
i play 3 sports and right now can only play one..
lacrosse is my favorite and since I'm a goalie i am allowed to play...
it gets better!
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13 years 11 months ago #19045 by Alex
Replied by Alex on topic Re: Just diagnosed
Good news!! I got my blood checked amd my platelets are at 201k!!! I dont have it anymore but i will be praying for all of you:)
  • ilovelucy407
  • Offline
  • it has been 3 years alreay since my knowledge of my ITP. it took a year but everything is back to normal and on 10-29-12 i gave blood so that i can help somone in the same condition i was in or worse. it is just a good deed that paid off in the short run.
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13 years 10 months ago #20066 by ilovelucy407
Replied by ilovelucy407 on topic Re: Just diagnosed
my name is Rebekah and i was diagnsised on June 15th 2009 with ITP it lasted for around 2 months and after i got 3 treatments and an bone marrow aspiration I have not had another relapse since. I was pronounced cured June of this year and i still get the blood spots along with bruiing. The good neews is though my platelets are staying up.:cheer:
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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