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Timothy's cbc today

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15 years 7 months ago #835 by lucidawn
Timothy's cbc today was created by lucidawn
He is at 86k! This was after his second injection of Nplate at double the smallest dose (I'm not sure what it is). He goes back next week, as you all know. He of course got his third injection today-holding at the second dose.

He was offered a splenectomy "while he is up", but I said no thank you.

So, maybe some of his stress can be relieved for a while. He is starting to have behavior issues, so he needs to stabalize.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 7 months ago #839 by Angel85
Replied by Angel85 on topic Re: Timothy's cbc today
Thats wonderful, there must be something in the water cause my platelets were 91 on Tuesday and then 82 on friday, and i haven't even started the nplate yet, so it is good to know that the nplate seems to be working for Tim. I have noticed when my count is high i don't feel as stressed, so hopefully he can just relax knowing they are high and the risk of bleeding is a lot smaller.
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15 years 7 months ago #841 by alisonp
Replied by alisonp on topic Re:Timothy's cbc today
Wow!!!

Hope you are both enjoying a bit of stress free time and that Tims count stays somewhere safe for the next while. All the worry must take its toll on Tim even if he seems laid back about it. Its been such a long time.

Ali :)

P.s. Am thinking that Dougie's platelets might have migrated over the atlantic to you, cos he is back to obvious bruising - haven't seen that since late october. Never mind, I am hoping its just a temporary dip..... :(
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15 years 7 months ago #883 by tacmom
Replied by tacmom on topic Re:Timothy's cbc today
Wow! He is responding great to Nplate! With his history earlier this year, I was thinking he would be going up quite a few doses before he saw a good jump. I hope he remains at 50 or higher at the same dose. With Nplate, they only go up .01 mcg each week if counts are below 50 so it sounds like he is at .02 mcg now. We were able to inject her at home at .05 mcg. I think the general rule to self injection is that the count must remain at 50 or higher for 3 or more consecutive weeks at the same dose. Do you know if Tim qualifies ever for self- injection or will it always be given by a nurse? I hope he is still not experiencing any side effects.
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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15 years 7 months ago #884 by lucidawn
Replied by lucidawn on topic Re:Timothy's cbc today
Well be going in to the office for injections. Tim has a way of avoiding meds, and going in to the office makes sure he gets his injection. He isn't experiencing any side effects so far, so its looking good. Hopefully, as you say, he will hold at this dose. I think Tim is his hemonc's first Nplate patient. He doesn't have alot of experience with it, it seems. But my boys tend to provide their healthcare providers with new and unusual training and experience all the time,lol. One with CHD and MS, and the other with ITP. My boys just don't fit in to the usual curve.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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