Debbie- I don't really know if Nplate will ever be an option for her. There is a study going on that is following adults on nplate who already have reticulin in their bone marrow. This study is supposed to follow them for 3 years and if it shows that reticulin is hindering with the bone marrow's ability to make platelets or the other cells necessary for survival, then they will know not to allow people showing evidence of reticulin stay on the drug. Caitlin is currentlydoing tests for lupus so based on these results will tell us the next step for Caitlin. I don't think we will be doing splenectomy as our next step.
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)
Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg
Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
