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Petechiae only when counts arelow?

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15 years 2 months ago #6978 by momninflorida
Petechiae only when counts arelow? was created by momninflorida
Hello all -

I am hoping those of you with more experience can help me. My now 18 month old son was diagnosed with ITP two months ago and his counts have been as follows:

Admitted to hospital: 1
IVIG/next day: 49
5 days later: 125
2 weeks post IVIG: 22
1 week later: 18
2 weeks later: 21
Latest count 2 weeks later: 49

His platelets went from 21 to 49 without any treatment so we are thilled however what concerns me as we wait for his next count on Wednesday, two weeks after his last at 49, is that I am still noticing occasional patches of petechiae. Definitely not a lot and nothing like it had been but my hope was that now that his counts more than doubled on their own that he is on the mend and by now he'd be higher than 49. I know he isn't in the normal range yet but can you still get patches of petechiae from pressure at higher counts or is this a definite sign he is down again? He had petechiae at 49 too but I am wondering at what numbers petechiae usually stop appearing.

Hope I didn't ramble and thanks for any help!
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15 years 1 month ago #7128 by juliannesmom
Replied by juliannesmom on topic Re:Petechiae only when counts arelow?
In my ITP teen, I used to think I could tell when her counts were low, because she got petechiae, but she sometimes gets them even at normal counts. Lots of folks on here get petechiae with normal counts, so I don't think that's a reliable indicator. If my kid gets dark, cobalt blue or black bruises, without a known cause, and if the bruise doesn't hurt, this usually means the count has dropped. (I wouldn't go pressing on bruises with an 18 month old who doesn't understand what you're doing, however. It sounds sick for any of us to press on our kids' bruises, but the older kids know why you're doing it, and many of the adult patients here agree that ITP bruises seem not to hurt, and normal bruises do. I'm guessing it's because normal bruises actually have a traumatic origin.)
Norma
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