Platelet Disorder Support Association

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Devyn

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15 years 2 months ago #6251 by dbishop
Devyn was created by dbishop
Today's results were 175,000.....nice jump from 3 weeks ago at
82,000. Keepin my fingers crossed that this lasts for a bit!!! Very greatful for these high numbers :)

Deanna
Mommy to Devyn 3 years old
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15 years 2 months ago #6256 by tacmom
Replied by tacmom on topic Re:Devyn
Whoohooo!!! That's fantastic!! I hope those counts hang in there and he is headed for remission!!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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15 years 2 months ago #6311 by alisonp
Replied by alisonp on topic Re:Devyn
Hey thats brilliant, but where on earth did it come from????? My mum keeps on saying about Dougie, if they could only find out what causes the jumps, they could surely do something to make them permanent.

Hoping all those platelets stay there for Devyn for a good long time!

Ali :) :) :) :) :)
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15 years 2 months ago #6336 by dbishop
Replied by dbishop on topic Re:Devyn
Hey Ali,

He had a bit of a cold the week befor and sometimes that will make his counts go up but I have had times where a cold will make him crash to low numbers too....hopefully these numbers stay strong for a while!! :) How is Dougie these days?

Deanna
Mommy to Devyn 3 years old
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15 years 2 months ago #6338 by alisonp
Replied by alisonp on topic Re:Devyn
That makes sense - the only time Dougie got into triple figures was after he had had flu or something that gave him a temperature for a few days. Colds tend to make his count go the other way, although like Devyn, its not always predictable.

Dougs is doing fine. Am guessing 30s because of bruises but no petechiae. He is playing paintball with his class today - it is their end of school treat because they are leaving to go to secondary school at the end of this week.

Just got back from a break to the south of France with my husband to celebrate our 10th wedding anniversary. It was really brilliant, especially cos we left the kids at home with my parents in law in charge! Four days of peace and calm - but not for my parents in law who've now gone home to have a well-deserved rest!!!!

Ali :cheer:
Moderators: jaycharness
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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