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Timothy 250K

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15 years 3 months ago #6105 by lucidawn
Timothy 250K was created by lucidawn
He's at 250k this week and holding his Nplate at 3 mcgs per kilo. He is going to have a dentist appointment next week (Friday). The hemonc said, "They can cut him if they want", and was ecstatic at his high counts. He's so happy when Tim has high counts, like a kid, and seems so sad when his counts are low. Its like he feels responsible. Its nice that he cares.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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15 years 3 months ago #6134 by tacmom
Replied by tacmom on topic Re:Timothy 250K
Wow, he is really hanging in there with that dosage!! That is really great! I hope everything at the dentist goes smoothly!

Our dr used to get really happy with Caitlin's counts, but now they're so unpredictable that we just take whatever we get and do what we have to for that week. We've definitely connected her migraines to high platelets. She is going to see a pain dr on Monday (don't like the sound of that because she isn't in pain other than when she has her migraines), but apparently this dr is also a headache specialist and can put her on some better medication than the Norco. She had to take that again earlier this week but we are really limiting how much she can take because we don't want her to become dependent on them.
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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15 years 3 months ago #6138 by lucidawn
Replied by lucidawn on topic Re:Timothy 250K
Yeah, narcs are not the best for migraines. I'm glad they are getting her in with a specialist. As a longterm migraine sufferer (who doesn't get them anymore due to a med I take now), you will be thankful and relieved.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 3 months ago #6171 by Angel85
Replied by Angel85 on topic Re:Timothy 250K
Wow, that's awsome news, that should take a little bit of worry off your plate for the moment
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15 years 3 months ago #6181 by lucidawn
Replied by lucidawn on topic Re:Timothy 250K
Lauren,
Yes, it helps, though ITP always lurks in the shadows.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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