Krissy,
I'm so sorry to hear about Kayla and missing her music camp. ITP stinks and it's a bummer that kids have to miss their activities. Can she get back to the camp after treatment? I hope she can do something fun this weekend!
My son, Brady has had IVIG and WinRho many times. Of course, everyone is different and everyone's ITP is different, but we prefer WinRho-type products (Brady currently receives Rhophylac, which is like WinRho). Brady responds really well to both of them, but IVIG takes longer to infuse and requires a hospital stay for Brady and he gets much sicker from the IVIG reaction. He misses a week of life with IVIG and the recovery and only misses a couple days with WinRho.
You referred to the WinRho discussions - I think that had to do with a black box warning that came out about WinRho. Since then, Brady did receive Rhophylac again. This time, they didn't have enough for his infusion (!) but we went ahead and gave him a half dose. So far, he seems to be doing well. He has never gotten serious anemia, but one time he stayed quite pale for a while and just wasn't feeling well. We had to get several CBCs and his hemo was watching him closely to make sure he was recovering.
In the beginning, Brady got 5-6 weeks between treatments, but now he goes much longer - sometimes over a year.
Good luck with Kayla. I hope the treatment gives her a good long break from ITP!
Beth - mom to Brady (age 13, diagnosed 1/18/02) and Matthew (age 16)
Beth - mom to Brady (age 19, diagnosed 1/18/02) and Matthew (age 21)
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