First of all, how do I get my information to show at the bottom of my posts? (i.e. my name, and the list of treatments that Danica has had so far)
Second - to Donna, Ali and Pauline - I hope everything is going well with your kids. I read Ali's post, and I am glad that Dougie is doing well, Donna, you are always on my mind and I worry so much about you and poor Tim.
Last but not least, Danica is still doing the same thing. Her count was 7 today, so we will go for IVIg #27 tomorrow. Her hemo is away for this month, so we will not start the Decadron until March. I am trying to be hopeful, but fear that it may not do as well as I want it to, as she was resistant to the Prednisone. I guess there is only one way to find out - and I guess we will do that in March.
Michelle
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594