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Pauline

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 months ago #5577 by Sandi
Pauline was created by Sandi
Good luck tomorrow!
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15 years 3 months ago #5597 by tacmom
Replied by tacmom on topic Re:Pauline
Thanks Sandi! We just finished at Rheumatology and we re at Hematology now. They reran her labs and said that at this time she has all the indicators pointing towards possible developing Lupus even though "she's not there yet". They want to put her on plaquenil but the hematologist said to wait and see what her platelet count is. If they are ok, then she will call in the prescription for it. They also found a cyst in her wrist that they said she needs to get removed and due to the size of it, it needs to be surgically removed. (We knew it was there but thought it was her bone sticking out.). We will see what the hematologist says when we see her in a bit.
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
  • Sandi
  • Topic Author
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 months ago #5618 by Sandi
Replied by Sandi on topic Re:Pauline
I replied to you in your other thread, but want to add this. The Rheumatologist has had those results for months. They waited until you came in to tell you that she had to start Plaquenil ASAP? Boggles the mind.
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