Platelet Disorder Support Association

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Timothy

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15 years 3 months ago #5462 by lucidawn
Timothy was created by lucidawn
170k, staying at 3 mcg per kilo.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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15 years 3 months ago #5491 by alisonp
Replied by alisonp on topic Re: Timothy
Hey thats good. You must be getting used to it! I am thinking that Dougie is back down to the teens today - loads of marks on his skin, bruises etc
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15 years 3 months ago #5512 by lucidawn
Replied by lucidawn on topic Re:Timothy
yeah, he's been in triple digits for a while. I think, though, that at 3 mcgs he may whittle down slowly to his double digits again. But for now, he's holding a good count.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
More
15 years 3 months ago #5604 by xray001
Replied by xray001 on topic Re:Timothy
OMG - that is SO GOOD to hear!!!
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
Moderators: jaycharness
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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