Some really good news

Danica just had her latest IVIg on Friday (she went a full two weeks!!!). I am not sure what her count was. It was 19 three days before the IVIg. I had to check it that day because it was track and field day, and I wanted to make sure she was ok.

She got 2nd in triple jump, and ended up going to Districts on Thursday. She got 4th. I thought it was pretty good considering that she has not done much this past year.

Today marks her one year anniversary of diagnosis. Yes, I am sure you all agree with Danica when she says "it is nothing to celebrate".

We saw her ped on Friday as well, and they had the letter from the Ped Hemo in Edmonton. We go on the 2nd of July.

I wrote to him yesterday explaining that we were not yet ready to remove a healthy spleen from Danica, and that we were still wondering if there were any other issues (such as Endocrine) that could cause this.

He wrote back right away stating that "splenectomy is not the only option she has" and that if there needs to be other testing, he will make the arrangements. I am really impressed with this guy. I don't want to get my hopes up, but that is a pediatric hospital, with ONLY ped doctors. They do way more things there then we have even heard of in Saskatchewan.

Danica is not really wanting to try any other meds, but I guess we will see how she feels after talking to him.

I don't want to get my hopes up, but I have a really good feeling about this guy.

I have replied to a few of your posts. Ali, Pauline and Donna - keep hanging in there!!!

I also retested Danica's TSH and it was perfectly normal. Yippee!!!

Congrats to Danica for doing so well at her track meets! Thats awesome! Sorry she continues having to get IVIG so often. Im glad to see that you will get to take her to a pediatric hospital and it does sound promising! I will keep my fingers crossed that they find something to help her to give her more options in treatments!

We go to a Children's hospital so we always see pediatric specialist. Caitlin will go back to her pediatric rheumatologist on Tuesday and will see a pediatric neurologist soon. I remember asking my own rheumatologist a question about Caitlin and her reply was "she is a child so there is a whole other scenario going on that she reallt isnt familiar with.". At first i was a little offended by her answer but then i realized that we live in a big city so the drs here have the right to limit their focus to specific things. Sometimea i wish we could all see the same dr out of "conveniency", but i know it isnt possible here. (i LOVE my primary physician and want her to see my girls but she wont until they turn 18. She will know them well when she gets them because she had me before both girls were born.)

Hey Pauline - nice to hear from you.

I sure hope you get stuff worked out with Caitlin. She sure has not had an easy time with this. Good luck with the rheumatologist,a nd neurologist.

Keeping my fingers crossed for you as well.