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Timothy-are you ready for this?!

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15 years 5 months ago #3912 by lucidawn
Timothy-are you ready for this?! was created by lucidawn
Went to the Hemonc today. Timothy is at...drum roll....150k! Triple digits!
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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15 years 5 months ago #3914 by jsmjboertlein
Replied by jsmjboertlein on topic Re:Timothy-are you ready for this?!
WOW!!! That's so great!
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15 years 5 months ago #3942 by tacmom
Replied by tacmom on topic Re:Timothy-are you ready for this?!
Wow! Fantastic response! Hope he continues to stay above 50 for a while so they don't have to increase his dose! I hope Tim was pleased to hear this count too! :)
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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15 years 5 months ago #3948 by lamonica
Replied by lamonica on topic Re:Timothy-are you ready for this?!
AMAZING!! Congrats :)) I would be calling the dentist ASAP and getting my son a cleaning :) before sending him out to play tackle football!
HOORAY for Timothy! and you too :)
LaMonica
mom to Camden (dx 6/09)
LaMonica
Mom to Camden (13yrs) diagnosed 6/09
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 5 months ago #3954 by Angel85
Replied by Angel85 on topic Re:Timothy-are you ready for this?!
Wow, thats fantastic
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15 years 5 months ago #3957 by alisonp
Replied by alisonp on topic Re:Timothy-are you ready for this?!
Get him to the dentists and get that tooth fixed quick - you have to take advantage of these opportunities quick! Hope he is feeling happier this week too.
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15 years 5 months ago #3962 by lucidawn
Replied by lucidawn on topic Re:Timothy-are you ready for this?!
Yeah, for the dentist we have to plan way ahead. The hemonc wants to amp him up with steroids, etc, before doing it. I was going to wait and see if he stays up next week because if he crashed right after the wisdom tooth extraction he would bleed a lot. This is the hemonc's major concern.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
15 years 5 months ago #3998 by Angel85
Replied by Angel85 on topic Re:Timothy-are you ready for this?!
Wish mine were going in that direction, mine have been 19, 18 the past few weeks and were 11 again yesterday even with the Nplate, so it was another double dose again and 12mg pred just for this week to see if that makes any difference.
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15 years 4 months ago #4248 by xray001
Replied by xray001 on topic Re:Timothy-are you ready for this?!
NOW WAY -- HOW INCREDIBLE!!!!!

Oh man, I never thought I would see the day when I would read that Tim had a count like that. For so long he was 1 and 2 and now 150. How terrific.

Donna - you probably should have gone out and bought a lottery ticket - I think this is your lucky week.

Hope Tim is feeling okay.
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
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15 years 4 months ago #4264 by lucidawn
Replied by lucidawn on topic Re:Timothy-are you ready for this?!
MICHELLE! Dang, I missed it! I definitely should have bought one, lol.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
Moderators: jaycharness
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