Good afternoon. Thank you for reaching out. I'm sorry to hear about your son. Unfortunately, no. We were at Georgetown for the majority of his care, but there were some changes and it no longer became the ideal place for us to go. Long story short, we now receive our care from Dr. Lambert at CHOP. She is amazing! She has a dedicated team to support platelet disorders, is an expert in the field of ITP, is on the board of medical advisors for PDSA, and has a unique understanding of the primary and secondary effects of ITP on children. The arrangement works for us given our son's relative stability with his medication (Promacta for ~7 years). We do have some bumps in road every now and then, but generally we maintain a fairly consistent, safe, platelet count.
It's a lot to wrap your arms around in the beginning. If you have any other questions, please do not hesitate to reach out.