Ali,
Yeah, I think that his body probably does what it can to destroy what it has identified as a harmful and foreign substance...its own platelets! So it tries to compensate, I guess. He is tolerating it, but he said today that it makes him feel like the promacta made him feel.
I hope that Dougie's count is up, and I hope your other son gets into the ENT sooner than you think. Doesn't sound like your ENT is very sharp. Can you see another one?
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
