My nine year old daughter is suppose to be starting rituximab next week. I have just recieved some info about it from the hospital and one of the things it says is that they don't know if it affects fertility. I find this really worrying. I am going to phone the consultant on Monday to ask about this, but in the meantime I'm just wondering if anyone knows anything about this?
Also, where it mentioned the flu jab the consultant has written on it saying she doesn't need this as she will only have the treatment once. I know pople on here have had high platelet counts for a couple of years from rituximab, but my daughter's consultant says if it works, it would last for 6-9 month. If this is the case then I can't work out what the point is of just doing it once. Surely if it does work then they would want to keep doing it so her counts are always normal or is that not the way it works? If it can affect her fertility then I don't think just 6-9months of normal counts is worth it.
My daughter tried steroids, it didn't work and thenside effects were terrible. Can anyone suggest any other treatment options?
BTW my daughter has had ITP for about 7 years and her count has never been above 30. She suffers really badly from fatigue and sometimes gets really bad nose bleeds. The consultant wants to try treatment now as he says fatigue and bleeding are only going to become more of an issue when she hit puberty.
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