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Hey Ali

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15 years 5 months ago #2936 by xray001
Hey Ali was created by xray001
I thought of this last night - Danica just had ivig on Thursday, so guess what - she is NOT cleaning!!! Maybe I should do the watch and wait approach - if her count is low, then she will clean all the time.

I am just joking - don't think that i am a bad parent!!! ha ha

Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
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15 years 5 months ago #2946 by alisonp
Replied by alisonp on topic Re:Hey Ali
HaHa!!!!! You made me laugh into my tea. :silly: :lol: :laugh:

Its probably a good thing that I am Dougie's mum and not Danica's - you might be too nice to take the cleaning into account, but unfortunately I don't think I am!!!

When he gets home from his grandma's at the weekend I am going to continue my quest to get Dougie interested in mops and brooms. I've failed miserably so far with him and his 3 brothers, so any tips from anywhere would be welcome. Although to be fair, my 9 year old loves cooking.

Tell Danica anytime she fancies a holiday in England, she is more than welcome at ours - Loadsa dirt!!!!

Ali :P
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15 years 5 months ago #2987 by liam12
Replied by liam12 on topic Re:Hey Ali
hi guys, if cleaning is a symptom of itp then bring it on! Liam is messy messy messy B BUT THEN HE IS ONLY FOUR.
thanks its not often you read something to make you smile with itp . lol, :lol: .,Jenny
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15 years 5 months ago #2988 by alisonp
Replied by alisonp on topic Re:Hey Ali
Hi Jenny,

Don't get too excited! Dougie hasn't shown any signs of wanting to clean when his count is low either - or indeed when it is high or middling!!!!! Think it might be unique to Danica.....unfortunately!

Ali :silly:
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15 years 5 months ago #2992 by xray001
Replied by xray001 on topic Re:Hey Ali
Sure Ali - just send the plane ticket -- well -- maybe send two, and we will both be on your doorstep. You don't know how many people are in awe when I tell them about Danica's cleaning frenzies. There are so many people that want "a Danica".

Trust me, my boys are not cleaners at all. However, they are both excellent cooks. My husband's mom used to cater, and the kids learned a lot from her. Adam is really good at trying new things, and Matthew is a really good baker. They cook very different though - Adam is really "low fat" and Matt loves to use butter.

Hope to hear good news from all of you soon.

By the way, I am resisting taking Danica's blood this week. I will not check her until Monday when we start the Decadron. Normally, she should be lower than 15, so if her number is better than that on Monday, then it would probably be due to the Decadron kicking in. We will know by the weekend how she is doing count wise -- if she has dark circles under her eyes, and cleans like crazy, then that is a good sign that she is low.

I am keeping my fingers crossed that maybe she will a little higher than normal for day 11.

Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
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15 years 5 months ago #2997 by lucidawn
Replied by lucidawn on topic Re:Hey Ali
None of mine like to clean, and with the exception of Josiah (the 18 yo), I am the only one who will clean. Drives me nuts 'cause mine are all old enough by far to clean up after themselves. It gets very old...

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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15 years 5 months ago #3029 by liam12
Replied by liam12 on topic Re:Hey Ali
Hi Ali, im keeping my fingers crossed for both of you ,,good luck,Jenny
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