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Diagnosed for the 3rd time

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10 years 8 months ago #45838 by srogers
Diagnosed for the 3rd time was created by srogers
Hello. My 7 year old daughter was just diagnosed with itp for the 3rd time. The 1st time was 3 years ago. She has recovered on her own with no medical intervention (just observation) both times so we're hoping this time is the same. This isn't considered chronic itp because her plateletes return to a normal range within a few months. Her hemo is doing tests to see if there is an underlying cause causing this to reuccur. Does anyone have any info on recurrent itp? I'm wondering if this will just keep happening.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 8 months ago #45845 by Sandi
Replied by Sandi on topic Diagnosed for the 3rd time
Many times, ITP can relapse due to a bacterial or viral infection or a medication used to treat them. Sometimes there is no known reason or cause; it just happens. How low do her counts go and how often is she tested? If she is not tested when she doesn't have symptoms, it's possible that counts were down, but not low enough to notice. That has happened to me.

Chronic ITP is considered to be thrombocytopenia that lasts longer than a year, which seems to be the case with your daughter. I'm not sure if it would be considered 'relapsing and remitting' ITP or simply chronic. Maybe just semantics?

Good luck with the test results. Please let us know how everything goes.
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10 years 8 months ago #45947 by Aoi
Replied by Aoi on topic Diagnosed for the 3rd time
Semantics and individual preferences of the hematologist may play a role here, as Sandi said. My current hematologist put air quotes around the word ITP when I saw him last year for a follow-up because my recent platelet counts have been above 100. He didn't want to say that I had someone gotten over ITP, especially since my counts are rarely above 140 and have only been in the normal range twice in the past five years. I think he was doing that to soothe me and give me confidence that I didn't have to worry about my platelet counts. There's also a tendency to evaluate and classify ITP differently in children versus adults, but I don't know any of those details. Whatever the semantics or other details, I hope your daughter enjoys a permanent recovery/remission.
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9 years 1 month ago #55300 by Croxford
Replied by Croxford on topic Diagnosed for the 3rd time
Hi SRogers. Interesting to hear of another case of recurrent ITP. My son is now onto his 8th or 9th case in the last 5 years. He's almost 9. Each time between he fully recovers. He has had almost every blood and immune system test thrown at him and fits no known disease. We are now at the point of getting his DNA sequenced. Interested to hear if you have had any more relapses in the last one and a half years.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 1 month ago #55302 by Sandi
Replied by Sandi on topic Diagnosed for the 3rd time
ITP often remits and recurs, especially if treatment brings counts up. It's either chronic ITP or acute ITP that keeps showing up. Does anything seem to precede the drops, like an illness or vaccine?
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