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Dapsone

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11 years 2 months ago #42629 by Tcammauf
Dapsone was created by Tcammauf
Anyone have experience or information to share about Dapsone? Last week my daughters count was 2 and her mouth was bleeding often. Our two treatment options were Rituximab or Dapsone. She's been under 20 for the past six weeks and only had a couple of counts above 50 in the past three and a half months since diagnosis. She's 11. IVIG did not work. Steroids did not work. They said she is refractory. She started Dapsone 6 days ago. She looks worse.....still mouth bleeding and much more petechiae. It's showing up in patches. Any thoughts on the drug and should it be at least helping a little by now??? Thank you!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 2 months ago #42650 by Sandi
Replied by Sandi on topic Dapsone
Dapsone will take a while to work, weeks or months. It's not used often and doesn't have a very good track record as far as success, but it does work once in a while.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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