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Moodiness or irritable with ITP

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11 years 7 months ago #39789 by EvelynMom
Moodiness or irritable with ITP was created by EvelynMom
Hello,

Evelyn is three years old. She recently wa taken off her steroids and has been doing quite well with platelet counts. Her last one was last Tuesday and it was 100,000. However, I am noticing an increasingly irritable child and moody child. Could this be to low platelet count. Her mood was consistent with this right before she was diagnosed and had a platelet count of 1,000. She has a cold too, I am wondering if that is affecting her platelet levels. I would appreciate any insight! Thanks!

Alison
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 7 months ago #39790 by Sandi
Replied by Sandi on topic Moodiness or irritable with ITP
A cold could affect platelet levels. How long has she been off of Prednisone?
The following user(s) said Thank You: EvelynMom
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11 years 7 months ago #39794 by EvelynMom
Replied by EvelynMom on topic Moodiness or irritable with ITP
she has been off the prednisone for 2 weeks, almost three.
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11 years 7 months ago #39796 by EvelynMom
Replied by EvelynMom on topic Moodiness or irritable with ITP
well, she is defiity sick. I just checked on her and she has started to spike a fever, bummer. Hoping this won't affect her appointment on tuesday.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 7 months ago #39798 by Sandi
Replied by Sandi on topic Moodiness or irritable with ITP
Coming off of Prednisone can affect mood. People can feel very fatigued for weeks after tapering off.

I hope she gets better soon!
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11 years 7 months ago #39810 by Jacksonsmom23
Replied by Jacksonsmom23 on topic Moodiness or irritable with ITP
My son is 7 and was diagnosed in September. I notice a drastic change in his moods when is platelets are low. His face becomes very pale and he gets very fatigued and moody. His platelets are always below 5. He had a bone marrow biopsy done recently and he received a platelet transfusion. The days following, all his colour returned to his face and his energy and mood was great...I believe there is a direct relation between the two an although there isn't much evidence (some doctors say) I believe there is....I have also spoke with other parents of children with itp who's experience is the same.
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11 years 7 months ago #39817 by Ann
Replied by Ann on topic Moodiness or irritable with ITP
Well it's known that fatigue often goes with ITP and the low count so it's quite understandable that a child would feel irritable if they can't do the things that they normally are able to do.
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