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Fatigue

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12 years 1 week ago #36760 by grasshopper
Fatigue was created by grasshopper
How tired do your children with ITP get?

Hannah has been struggling with tiredness recently. Today she couldn't get out of bed this morning and I ended up getting her dressed as she was so tired. We got home from school at 3:30 and got her PJs on and brought her duvet downstairs straight away and laid on the sofa until bedtime. She was constantly yawning and I've never seen her look so tired before.

Is it normal for your children to be that tired?
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11 years 11 months ago #36987 by firkins
Replied by firkins on topic Fatigue
Hi, My daughter gets super super tired when her platelets are low. Plenty of others report the same thing. She doesn't get quite as tired as your daughter -- but maybe your daughter is also growing at the same time (?) -- or this is just the way it is for her. I find it frustrating that the doctors are constantly amazed that the fatigue is "real." We were in teh hospital yesterday for a rituxan treatment and the hema on call just thought it was the wierdest thing. "Why would that be?" ARGGGG Have you ever talked to your patients I wanted to say?! Anyway: our hema knows it is one of the first signs for our daughter that the numbers are plummeting.

Wising you high platelets!
Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
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11 years 1 month ago #43116 by gridley
Replied by gridley on topic Fatigue
My two-year-old was diagnosed about three weeks ago (platelet count of four; so far untreated). He used to be a ball of manic energy, but now it seems like he burns through his energy and ends up tired a bit sooner each day. On the plus side, at least it's curbing his more reckless behavior and making him want to snuggle more. Still, it's weird and sad and worrying.
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11 years 1 month ago #43119 by dawn1979
Replied by dawn1979 on topic Fatigue
Brianna is always tried when her counts are super low. she has been sleeping anywhere from 11-14hours a day. For the last 3 months her counts have been under 5
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11 years 4 days ago #44139 by Brandi
Replied by Brandi on topic Fatigue
My son will have moments where he is like "I just need to rest" but all in all he is still always bouncing off the walls.
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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10 years 9 months ago #45595 by cdavis1
Replied by cdavis1 on topic Fatigue
Our 2yr old goes and goes. Is there any proof that a more quiet routine will help with #'s. His have dropped since the holidays.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 9 months ago #45597 by Sandi
Replied by Sandi on topic Fatigue
No, activity levels do not really affect platelet counts.
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10 years 9 months ago #45599 by TerriC14
Replied by TerriC14 on topic Fatigue
My 18 yo struggles with fatigue. Her counts are in the 7 range, thankfully she is not having any major bleeding issues but she is having some annoying minor bleeding and is tired. She struggles to stay awake after 8pm and does have days where she is content to just lay on the couch after school and not move. The doctors ask her about fatigue and headaches as well as bleeding symtopms.
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10 years 9 months ago #45675 by Elizabeth5
Replied by Elizabeth5 on topic Fatigue
Hi my 7yo daughter has had a little over a year befor she started the chemo pills she wasnt tired but now she's tired all the time..but at least her bleeding problems have clamed down alot..
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