Platelet Disorder Support Association

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!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Stil here!

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12 years 3 months ago #34235 by Brandi
Stil here! was created by Brandi
I haven't logged in in a few months or so. I'm not even sure who is still around. But if anyone out there still remembers me and Ryan... we're still here.

Ryan (dx 01/2012 age 4.5) is now considered having "chronic ITP" He hovers in the 40's... sometimes dipping as low as 5, sometimes going as high as 60.

But 18 months later and he still has it. Oh well...
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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12 years 3 months ago #34249 by crystal lee
Replied by crystal lee on topic Stil here!
Sorry to hear.. I remember you, we are still here also..

My son was diagnosed July 2011 1 years old, He still hangs below 20 :(
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12 years 3 months ago #34255 by alisonp
Replied by alisonp on topic Stil here!
Still here too unfortunately - trying ti ignore tip, but it's quite hard at the moment! Pleased to hear Ryan is doing ok .......chronic is only a word - it doesn't mean much. :)
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12 years 2 months ago #34411 by Brandi
Replied by Brandi on topic Stil here!
Thanks everyone. Ya know, I keep telling myself there are "worse" (I hate that term... maybe more challenging?) conditions out there to live with. We're doing okay managing his ITP. We are *thisclose* to the 1 year anniversary since his last treatment. I know it doesn't mean anything, but its the small things :)
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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12 years 3 weeks ago #36347 by firkins
Replied by firkins on topic Stil here!
Hi All,
I am glad to see you all, I, too have been off this site although fairly active on the fb site. Hope everyone is keeping their spirits up. We are not sure but think mia's platelets may be coming down after the Rituxan -- it's about 7 months and she's down from the 300's to 90. I know I know - 90 is like heaven so I'm not moaning, but wonder if it will go down more or whatever. Glory this disease is the pits. Always with you in one way or another although Mia has had a very blessed 7 months.

Hope all our well. Brandi -- take care.
best, Firkins
Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
Moderators: jaycharness
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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E-mail: pdsa@pdsa.org


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