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Caitlin's Rituxan Update--10 1/2 years!

  • wildroseao@aol.com
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12 years 4 months ago #32469 by wildroseao@aol.com
Caitlin's Rituxan Update--10 1/2 years! was created by wildroseao@aol.com
Hello all you PDSA people!

It's been about a year since I last updated you on how things are going with my daughter, who developed ITP at 14 years old (bleeding out from her menstrual cycle!!!), was treated with pred. pulses for about a year, then finally received the 4-dose course of Rituxan starting in Sept.-Oct, 2002. That makes a remission of 10 1/2 years.

I am SOOO thankful for this site, where I first learned of Rituxan, and for all of you, who listened while I chaffed aloud!

To infinity and beyond with those platelets! B) Ann, Caitlin's (almost 26) Mom
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12 years 4 months ago #32480 by eklein
Replied by eklein on topic Caitlin's Rituxan Update--10 1/2 years!
I can't believe your daughter is a grown up woman already!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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12 years 4 months ago #32669 by tacmom
Replied by tacmom on topic Caitlin's Rituxan Update--10 1/2 years!
Yay! So happy to hear of Caitlin's continued remission! Can't believe she is 26 already!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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12 years 4 months ago #32685 by Brklyn
Replied by Brklyn on topic Caitlin's Rituxan Update--10 1/2 years!
Wonderful news. Best wishes to you and your family. I love the 'to infinty and beyond'. Sometimes my 4 year old responds only to Buzz Lightyear. I tell him I love him to infinity and beyond. :)
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