We consulted another Hem-Oc, one of the options is N-Plate. Platelets have been in single digits for several months, mostly below 5,000. Fibrosis is a major concern, and he is terrified of having a bone marrow done. Please share your experiences with this drug. Positive and negative. So much to consider, this Dr. is a 4-5 hour drive, results vs. risk, and financial. How often did your child have the injections, and for how long?
He is 12 years old, 3 yrs post diagnoses. Treatments: IVIG (twice), Prednisone, Win-Rho, Rituxan.
After Rituxan he maintained platelets above 50,000 for 6-8 months. Neither doctor seems anxious to repeat this treatment, that is my first choice at this time. Any one else tried this? So far he has not had any uncontrollable bleeds, so part of me says leave things alone for a while another part is terrified of an accident causing a trauma. We will see the new Dr. within the week to come up with a treatment plan, please share your experiences.
