Platelet Disorder Support Association

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!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Tim

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13 years 5 months ago #24160 by lucidawn
Tim was created by lucidawn
2k...5mcg's three weeks now. :pinch:
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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13 years 5 months ago #24172 by alisonp
Replied by alisonp on topic Re.: Tim
BAD, BAD, BAD!!!!!

Don't know what else to say....poor Tim and poor Donna
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13 years 5 months ago #24189 by lucidawn
Replied by lucidawn on topic Re: Tim
Yeah I'm kinda frustrated right now. One good development is that they have gotten access to the NPLATE antibody test, so they will do that next week. In the meantime he stays at 5mcs per kilo because we don't know if he will respond. I've also mentioned rituximab and as a last resort, splenectomy. Very, very last resort.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
Moderators: jaycharness
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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E-mail: pdsa@pdsa.org


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