Tim's platets are 6k today, down from 9k last week.. They gave him 4 mcs again, and I was steaming. I asked to speak with someone and they at first said that it wouldn't do any good. I insisted, so finally they went to the nurse practitioner who called the homeonc. He came in to talk to us. He decided to do a BMA and BMB this Friday (Tim's first). He also said he'd send for another mcg of nplate to make it 5mcg (finally). The antibody test apparently is not available commercially, so we can't do that. He mentioned splenectomy again, and I reminded him that there are two failed splenectomies in the family already. Well, that's what happens when the doc never sees him...they don't remember the case.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
